Diagnosis journey
Our name for the path a family travels from first wondering about a child's development to getting answers. We ask where you are on it because your answer changes what your child's report is allowed to say.
Applies across the UK
When you tell us about a condition, we ask, 'Where are you in the diagnosis journey?' and offer seven options: Suspecting, Thinking about asking for help, Asked for help, On a waiting list waiting list The queue for a specialist assessment once your referral has been accepted. Waits for autism and ADHD assessments are long in much of the UK. Read the full definition of waiting list for assessment, Assessed, Assessed but below clinical diagnosis Assessed but below clinical diagnosis One of the seven options we offer when we ask where you are in the diagnosis journey. Pick it if your child was assessed and the team decided the result was below the line for a diagnosis. Read the full definition of Assessed but below clinical diagnosis , and Diagnosed.
These seven stages are our own wording, not an official scale. Pick whichever is closest, and change it later if things move on.
Your choice does real work. The report only states a condition as fact when you have picked Diagnosed for it. If you picked Suspecting or Thinking about asking for help, the report uses careful, tentative wording instead. If you picked Assessed but below clinical diagnosis, the report will not describe your child as having that condition at all. So it is worth keeping this up to date: it is how you control what the report claims.
Related words
Your child doesn't need a diagnosis to get support
Start with a profile of your child. See what we find. Go from there.